School-age children with FASD may continue to grow slowly. They may appear
thin and malnourished even though the diet is adequate. Their slow
growing head size is related to slow brain growth and development.
The elementary school years mark the time when additional problems may begin
to show. Children with FASD may have difficulty "fitting in" and
making friends. They may want to play with younger children or adults. It is
important to teach your child social skills. Skills must be taught early and
repetitively to become habits.
Children with FASD may not be able to learn from experience. They may also
have difficulty following rules. Rules may be known, but cannot be applied. They
may lack understanding of action and consequence.
The complex school environment can be especially challenging. Children
may feel overwhelmed which can result in problems with learning. Anger,
frustration, temper tantrums and refusals can be signs your child is having
difficulty. Listen to your childs complaints. The school environment may need
to be modified to suit special needs. It is important to work closely with the
school to assure that your childs needs are being met. PACER Center can help
parents work with schools. See the General Resources section of this booklet for
more information.
Due to problems with short-term memory, skills must be taught over and over
again. This can be frustrating for parents and teachers. However, repetition and
practice help in learning.
Health Care
Continue regular health care as discussed in the Periodic Health Care section
of this booklet. Concerns for this age group include promoting optimal growth
and development and activities of daily living (ADLs) skills. Special
needs related to FASD also need consideration. The following may be included:
- Height and weight need to be obtained and graphed. Children with FASD tend to grow slower than other children. They may not catch up later.
- A nutritious and balanced diet is important. A nutritional assessment
may be done.
- Exercise is important for all children. Exercise helps increase and
maintain muscle strength. Exercise also builds stamina. Releasing energy
through activity may help a child focus on learning. Find activities, sports
or exercise which fit your childs physical abilities. Discuss any
concerns with your health provider or professional.
Development
- Provide your child with specific information about FASD and related
conditions. Encourage questions. Remind him or her that concerns can be
discussed with parents, health providers and other professionals.
- Provide your child with opportunities to:
- Play with other children the same age. However, some children with FASD are more comfortable playing with children one to two years
younger
- Learn to start and complete activities during play
- Play outdoors in a safe area
- Succeed and gain self-confidence
- Maintain a balance between structured activities and free time
- Offer assistance or aids to help your child overcome difficulties which
may hinder progress. For example, a computer may help a child who has
difficulty writing.
- Difficulty making and keeping friendships may continue. This can result in
an increased dependency on caregivers.
- Parents may need a break from caregiving. Try to arrange respite care.
Family and friends may be of assistance. Respite care may also be obtained
through county services or parent organizations for children with
disabilities. Sometimes trained volunteers can provide babysitting for a few
hours or days. See the Resources and General Resources sections of this
booklet for more information.
- Children with FASD may have difficulty with abstract concepts
such as time, money and math. They may not be able to tell time even by the
age of 12. Problems understanding the concept of time may continue after
mastering the skill. The value of money is also a difficult concept to
grasp. Your child may not associate value to items. For example, $5.00 for a
piece of candy or for a television may seem acceptable. Monitor your
childs money. Limit access to money when you cannot directly supervise
its use. Give your child money only in small amounts. Do not expect
understanding of equal values such as four quarters being the same as a
dollar.
- Teach your child about ownership. A child with FASD will often take
something which catches his or her eye. The concept of stealing may not be
understood. Teach your child to ask before taking anything which does not
belong to him or her.
- Teach your child visual and verbal gestures to help
understand directions. Limit directions to 5-10 seconds. Use eye contact.
Direct one task at a time. Avoid using words with more than one meaning. Be
specific when telling your child what to do. Repeat directions as needed.
Helpful Hints to Manage Hyperactivity:
- Limit activities which cause overstimulation. Activities such as
pillow fighting, wrestling, television, video games or rock music may overstimulate.
Alternate activities requiring attention with those requiring physical
exercise. Quiet and focused activities such as painting or drawing may help
children slow down.
- Have a place where your child can go when overstimulated or overwhelmed.
It should be a comfortable and calm area. It should not be treated as a
punishment.
- Teach self-calming techniques. Soft music can be calming and may also help
to develop listening skills. If one technique is not working, try something
different.
Helpful Hints for Discipline Issues:
- Set both expectations and limitations. Consistent direction and discipline
are important for a child who has trouble learning and remembering rules.
Your child may not learn from past mistakes. Mistakes may be repeated over
and over again. Consistency helps all children develop self-control.
- Develop a system of rewards and discipline. Try to use the same system for
all your children. Children may notice if one child receives special
privileges.
- Discipline should be immediate. Do not delay. Your child may have trouble
connecting cause and effect. This means there may be difficulty in seeing a
connection between the behavior and the punishment. Discipline should be
viewed as an opportunity to teach appropriate behavior. A reward system may
work best. Sometimes praise and hugs can be just as effective. Change
rewards often to keep interest high. To avoid frustration, make sure there
are more successes than failures.
- Do not debate rules. Be brief. Avoid lecturing and threats. Review and
repeat consequences of negative behavior. Take time to teach and encourage
positive behavior.
- Avoid statements which place a value on behavior. For example, do not say
"that is a bad word." Say "you may not use that word."
Offer a different word which is acceptable.
- Children with FASD may copy behavior they have experienced or observed.
For this reason, never use physical punishments. Avoid all forms of
violence. Monitor television, movies and radio programs.
Helpful Hints to Provide Structure:
- Establish a few simple rules. Write them down or use picture cues.
Use the same language repetitively. Avoid using words with more than one
meaning. Be specific when telling your child what to do. Repeat directions
as needed.
- Speak slowly. Pause between sentences to allow time for understanding.
- Daily routine is very important. Daily routine helps your child predict
coming events. Before bedtime, prepare for the next day. For example, lay
out clothing and shoes.
- Clearly define your childs space. Children with FASD may benefit
from a comfortable area they can call their own. Avoid clutter and
distractions.
Helpful Hints to Encourage Independence:
- Encourage your child to assume responsibility and complete tasks. Allow
increased opportunities for decision-making. Teach your child to ask for
help. Provide guidance when needed.
- Give your child only as much freedom as can be handled successfully.
- Focus on daily living and survival skills. Daily "to do" lists
may be helpful. Set realistic expectations.
Helpful Hints to Encourage Self-Esteem:
- Identify a sport or social activity at which your child can be successful.
- Help your child feel valued. Give responsibilities which can be managed
successfully.
- Allow your child increasing control over when to take medication.
Mastering self-care gives all children a feeling of control and
accomplishment. Keep in mind that this task may not be possible for some
children with FASD.
- All children are better able to manage life if they feel good about
themselves. Praise your child often to build self-esteem. Praise
accomplishments. Reward rather than punish. Offer support, not criticism.
Praise the behavior rather than the child. For example, say "good
work" rather than "good boy" or "girl". Separate
your child from the behavior. Do not make your child feel as if he or she is
a bad person. Encourage positive self-talk.
- Children with FASD may need to be reminded that you like them. Notice
good qualities and behaviors. Thank them for their efforts.
- Provide your child with opportunities to meet others with the same
disability. Often this helps with self-esteem and acceptance.
Helpful Hints for Behavior Issues:
- Behavior may be changed by redirecting activities. Try to engage your
child into positive play. Learn how to read and respond to emotional cues.
This may help avoid behavior problems.
- If anger is a problem, discuss and practice acceptable ways of noticing
and dealing with feelings. Provide a way and place to express anger in a
physical way such as kicking a ball. During tantrums, make sure children are
in a safe place where they cannot hurt themselves or others.
- Protect your child from viewing or participating in violence. Remember he
or she may not be able to differ fact from fiction.
- Limit choices. Frustration results from difficulty in choosing between a
variety of options.
- Learn to recognize signs that a problem is about to begin. Negative events
may then be avoided.
School
- At the beginning of each school year, meet with your childs teacher and
school nurse. Inform them of your childs development and any special
needs related to FASD. Keep them informed of changes throughout the year.
See the Family Support and Services section of this booklet for a list of
topics to discuss with school staff.
- If your child has asthma or allergies, ask about pets and plants in the
classroom.
- Make sure the school has instructions from your health provider about use
of medication if needed. The school nurse will need a pharmacy label on all
medications given at school. Contact your childs school for policies on
medication given at school.
- Encourage your child to be involved in activities appropriate for his or
her abilities.
- An Individual Education Plan (IEP) will be developed if your child
has special education needs.
- Medical appointments may conflict with family and school schedules. Decide
on priorities and then arrange appointments. Try to arrange appointments
during slow times at school.
- If your child is absent from school, request that schoolwork be sent home.
If schoolwork causes too much conflict at home, work with teachers to
develop alternatives.
- If possible, get to know your teachers and let them know you. If you have
time, volunteer. Develop relationships with school staff. This helps to
promote sharing of information and understanding of your childs needs.
- Try to take another parent or friend along with you to important school
meetings. Their support may be helpful.
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