|
J U S
T T H E F A C T S
Adolescents
with FASD
Ages 13 to 18
Typically, the thin build of children with FASD begins to change during
adolescence. Girls tend to become obese. After puberty, the facial
features of FASD are more difficult to recognize.
- Teenagers with FASD may display problem behaviors such as lying and
stealing. They may have poor judgment. They may have difficulty with peer
relationships. Alcohol and drug abuse are common. There is also a greater risk
for depression and suicide.
- Teenagers with FASD usually look like typical adolescents. However, their
developmental level may only be that of a six year old. Extra guidance and
protection may be needed.
In guiding adolescents with FASD, stress the following:
- Structure - create a structured environment which includes limited
choices. Have clear and set routines. Adjust the environment for slower
development and understanding.
- Supervision - carefully supervise adolescents so they do not place
themselves in dangerous situations.
- Simplicity - state instructions briefly and clearly. Use simple directions
and orders.
- Steps - break tasks down into small steps. Teach each step through
repetition. Lists may be helpful. Use rewards as incentives.
- Setting - teach desired skills in the way in which they will be used.
Adolescents with FASD may not have the ability to transfer skills from
one setting to another.
Health Care
Continue regular health care as discussed in the Periodic Health Care section
of this booklet. Routine health visits should address both the medical and
psychosocial aspects of health. Adolescence is a time of significant change in
development and behavior. There may be new needs which relate to special issues
of this age. Concerns include screening for health risk behaviors and promoting optimal
growth and development and activities of daily living (ADLs) skills.
Special needs related to FASD also need consideration. The following may be
included:
- A discussion of health prevention topics such as:
- Use of tobacco products and use and abuse of alcohol or other drugs
- Severe or recurrent depression and suicide attempts
- Physical, sexual and emotional abuse
- High blood pressure
- High cholesterol
- Infectious diseases
- Learning problems
- A discussion of health promotion topics such as:
- Adjustment to puberty and adolescence
- Healthy eating habits, proper nutrition and prevention of eating
disorders or obesity
- Safety and injury prevention
- Physical fitness
- parents ability to respond to health needs of their adolescent
- A discussion of mental health issues such as:
- Anger and violence management
- Ruling out other diagnoses such as personality disorders and
depression
- Self-esteem
- Emotional abuse
- A discussion of sexual health topics such as:
- Birth control
- Victimizing others and becoming victims
- Sexually transmitted diseases (STDs)
- Inappropriate sexual behavior
- Health services should meet the needs of the individual teenager.
Information shared with health providers is personal and confidential.
- Health care for teenagers with FASD may be difficult for health
providers and professionals. They need to be aware that teenagers with
FASD may not be able to provide accurate information. Due to memory gaps,
they may be unable to report symptoms or take medication.
- Exercise is important for all teenagers. Exercise helps increase and
maintain muscle strength. Exercise also builds stamina. Releasing energy
through activity may help a teen focus on learning. Find activities, sports
or exercise which fit your teens physical abilities. Discuss any concerns
with your health provider or professional.
Development
- Teenagers understand factual information about FASD. Give them specific
information about their condition. The information can be more detailed than
for younger children. Encourage your teen to read about FASD.
- Teenagers may need encouragement to ask questions. Remind them that
concerns can be discussed with parents, health providers and professionals.
- Allow your teenager increasing control over when to take medication or do
other treatments. Encourage him or her to be responsible for remembering
these things. Mastering self-care skills gives all teens a feeling of
control and accomplishment. It may still be necessary to remind a teen to
take his or her medication. Many teens with FASD are not be able to
manage their medication or treatments.
- Provide opportunities for your teenager to be faced with opinions, values
and beliefs which differ from his or her own. Peers are of increasing
importance to teens. Teenagers with high self-esteem can better
resist peer pressure. They will also be less concerned about being
different from their friends.
- Some teenagers may be vulnerable to pressure to be sexually active
or to use alcohol and drugs. They may seek acceptance from their peers
through these activities. Parents can help prevent these behaviors by
discussing concerns with their teen. Ask a health professional for ideas on
how to deal with specific problems and promote self-esteem.
- Independence is necessary for teenagers to develop responsible behavior.
They will need encouragement to increase their independence and make the transition
to adult life.
- It is important to remember that teenagers will not outgrow the effects of
FASD. It lasts a lifetime. Regardless of age, mental and emotional
functioning may be much lower. Teens may continue to require supervision to
keep out of trouble or dangerous situations.
Helpful Hints to Manage Hyperactivity:
- Limit activities which cause overstimulation. Activities such as
pillow fighting, wrestling, television, video games or rock music may overstimulate.
Alternate activities requiring attention with those requiring physical
exercise. Quiet and focused activities such as painting or drawing may help
teenagers slow down.
- Have a place where your teenager can go when overstimulated or overwhelmed.
It should be a comfortable and calm area. It should not be treated as a
punishment.
- Teach self-calming techniques. Soft music can be calming and may help to
develop listening skills. If one technique is not working, try something
different.
Helpful Hints for Discipline Issues:
- Set both expectations and limitations. Consistent direction and discipline
are important for a teenager who has trouble learning and remembering rules.
Your teen may not learn from past mistakes. Mistakes may be repeated over
and over again. Consistency helps all teens develop self-control.
- Develop a system of rewards and discipline. Try to use the same system for
all your children. Children may notice if one child receives special
privileges.
- Discipline should be immediate. Do not delay. Your teenager may have
trouble connecting cause and effect. This means there may be difficulty in
seeing a connection between the behavior and the punishment. Discipline
should be viewed as an opportunity to teach appropriate behavior. A reward
system may work best. Sometimes praise and hugs can be just as effective.
Change rewards often to keep interest high. To avoid frustration, make sure
there are more successes than failures.
- Do not debate rules. Be brief. Avoid lecturing and threats. Review and
repeat consequences of negative behavior. Take time to teach and encourage
positive behavior.
- Avoid statements which place a value on behavior. For example, do not say
"that is a bad word." Say "you may not use that word."
Offer a different word which is acceptable.
- Teenagers with FASD may copy behavior they have experienced or
observed. For this reason, never use physical punishments. Avoid all forms
of violence. Monitor television, movies and radio programs.
Helpful Hints to Provide Structure:
- Establish a few simple rules. Write them down or use picture cues.
Use the same language repetitively. Avoid using words with more than one
meaning. Be specific when telling your teenager what to do. Repeat
directions as needed.
- Speak slowly. Pause between sentences to allow time for understanding.
- Daily routine is very important. Daily routine helps your teenager predict
coming events. Before bedtime, prepare for the next day. For example, lay
out clothing and shoes.
- Clearly define your teenagers space. Teens with FASD may benefit
from a comfortable area they can call their own. Avoid clutter and
distractions.
Helpful Hints to Encourage Independence:
- Encourage your teenager to assume responsibility and complete tasks. Allow
increased opportunities for decision-making. Teach your teen to ask for
help. Provide guidance when needed.
- Give your teenager only as much freedom as can be handled successfully.
- Focus on daily living and survival skills. Daily "to do" lists
may be helpful. Set realistic expectations.
Helpful Hints to Encourage Self-Esteem:
- Identify a sport or social activity at which your teenager can be
successful.
- Help your teenager feel valued. Give responsibilities which can be managed
successfully.
- Allow your teenager increasing control over when to take medication.
Mastering self-care gives all teens a feeling of control and accomplishment.
Keep in mind that this task may not be possible for some teens with FASD.
- All teenagers are better able to manage life if they feel good about
themselves. Praise your teen often to build self-esteem. Praise
accomplishments. Reward rather than punish. Offer support, not criticism.
Praise the behavior rather than the teen. For example, say "good
work" rather than "good boy" or "girl". Separate
your teen from the behavior. Do not make your teen feel as if he or she is a
bad person. Encourage positive self-talk.
- Teenagers with FASD may need to be reminded that you like them. Notice
good qualities and behaviors. Thank them for their efforts.
- Provide your teenager with opportunities to meet others with the same
disability. Often this helps with self-esteem and acceptance.
- Notice what is right in a situation and offer encouragement regularly.
Helpful Hints for Behavior Issues:
- Teenagers with FASD may have problems with impulsive behavior. They may
not have internal controls on their behavior. They may be uninhibited
and lack good judgement. Remove temptations through close supervision. Try
to anticipate situations when your teen may act impulsively. This may avoid
or lessen problems.
- The need for instant gratification and poor judgement may contribute to
sexual behavior. A lack of understanding between actions and consequences
may lead to inappropriate sexual activity. Teach teenagers specific
rules about when and where sexuality is appropriate. Teach them how to say
no to peer pressure. Offer alternatives. Ask them to tell you if they
are feeling pressured or uncomfortable. Practice planning how to react in
stressful situations.
- Your teenager may be exposed to manipulation or criminal behavior. Close
supervision can protect your teen from harm from others. Close supervision
may also be needed to protect from pregnancy, HIV or other sexually
transmitted diseases (STDs).
- Avoid asking yes or no questions. Encourage sharing of feelings and
concerns. Thank them for being honest.
- Teach social skills. Teenagers with FASD may need help learning how to
give and accept compliments. They may need to learn how to start a
conversation or how to ask for things. Practicing how and what to say in
different situations may help them remember longer. Also help your teenager
learn how others express themselves nonverbally.
- Recognize positive behaviors as achievements. Reward successful efforts.
School
- At the beginning of each school year, meet with your teenagers school
nurse and teachers. Inform them of your teens development and any special
needs related to FASD. Keep them informed of changes throughout the year.
See the Family Support and Services section of this booklet for more
information.
- If your teenager has asthma or allergies, ask about pets and plants in the
classroom.
- Make sure the school has instructions from your health provider about use
of medication if needed. The school nurse will need a pharmacy label on all
medications given at school. Contact your childs school for policies on
medication given at school.
- Encourage your teenager to be involved in activities appropriate for his
or her abilities.
- An Individual Education Plan (IEP) will be developed if your
teenager has special education needs.
- Medical appointments may conflict with family and school schedules. Decide
on priorities and then arrange appointments. Try to arrange appointments
during slow times at school.
- If your teenager is absent from school, request that schoolwork be sent
home. If schoolwork causes too much conflict at home, work with teachers to
develop alternatives.
- If possible, get to know your teachers and let them know you. If you have
time, volunteer. Develop relationships with school staff. This helps to
promote sharing of information and understanding of the childs needs.
- Try to take another parent or friend with you to important school
meetings. Their support may be helpful.
- Career counseling is available to teenagers during high school. Career
options should be realistic and relate to the skills of the individual. Many
individuals with FASD may not be able to maintain a job or live
independently. Contact the school counselor for more information.
Back to top
|