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J U S
T T H E F A C T S
Infants and
Toddlers with FASD
Ages 0 to 3
Infants born with FASD may have a difficult first few months. Some infants
show behaviors related to withdrawal symptoms from alcohol. These symptoms can
include seizures, sleeping disorders, stomach upsets and extreme
fussiness. Some infants are unable to screen out unwanted noise and
distractions. This may cause overstimulation, frustration and
irritability.
Many infants with FASD are born with low birth weight. Some have
difficulty getting adequate nourishment due to poor sucking and swallowing
abilities or mouth abnormalities. There may be failure to thrive
or height and weight growth deficiencies. Nutritional assessments and
monitoring may be needed.
Most infants with FASD show:
- Irritability, jitteriness and nervousness
- Sucking or feeding difficulties
- Poor muscle tone
- Sleep disorders
- Sensitivity to sound and light
- Excessive crying
- Decreased alertness
Older infants with FASD tend to:
- Be easily upset
- Be easily distractible
- Be hyperactive
- Have short attention spans
- Have developmental delays
- Have problems using muscles
Health care team members need to be aware of the infants physical, mental,
emotional and behavioral development. This will help determine special needs
related to FASD. It also helps health providers and professionals understand
family strengths and resources. Early intervention is the first step to
an improved prognosis. Ongoing follow-up will also be required.
Helpful suggestions for interventions include the following:
- It is important to learn what your infant is trying to tell you.
Understanding cues helps parents meet their childs needs and
lessen stress.
- Because of hypersensitivity to sound and touch, sensory
stimulation should be decreased. Try to:
- Keep lights low.
- Keep noise levels to a minimum.
- Gradually introduce stimuli one at a time.
- Use calming techniques when overstimulation occurs. A warm bath
or shower, listening to quiet music, swaddling or rocking may help.
- Provide consistent bedtime routines. Darken the bedroom at night and at
nap times. Provide soft snug clothing. Try to discover which textures are
comforting. Lessen distractions in the bedroom. Avoid mobiles. Use plain
bumper pads. Simplify room decorations. Avoid clutter and busyness. Use white
noise such as a fan or soft relaxing music.
- Healthy eating should be a daily goal. Try to make mealtime a positive
experience. Suggestions for feeding include:
- Learn hunger signs and serve food when signs are first shown.
- Serve small frequent high calorie meals and snacks. Four to six meals
per day may be needed for adequate nourishment.
- Reduce distractions while feeding. This helps an infant focus on eating.
Feed in a quiet and slightly darkened room. Do not rock or talk while
feeding. Do not turn on a radio or television.
- Never prop a bottle or leave a child unattended while eating.
- Allow ample time for eating. Have reasonable expectations on portion
size. Serve food warm. Avoid hot or cold foods. It may be helpful to
reduce the texture of foods offered.
- Limit choices.
- Seek help from a nutrition professional.
Health Care
- Continue regular health care. Concerns for this age group include vision, hearing
and dental screening, cognitive, motor and language development.
Social skills, nutrition and special needs related to FASD also need
consideration. The following may be included:
- Height and weight need to be obtained and graphed.
- Infants and toddlers with FASD often have growth problems. Diets need
to be monitored. The diet will have many changes during this period. Contact
your health provider or dietitian if you have questions.
- Some feeding practices seem to reduce the development of allergies.
Breastfeeding is usually best. Avoid alcohol while breastfeeding. Avoid
cows milk during the first year. Your health care provider or
professional can suggest an infant formula if needed. Wait until your infant
is 6 months old to slowly introduce solid foods.
- Flu shots may be given to prevent influenza.
- Medication dosages may need to be changed frequently.
- Upper respiratory and ear infections may occur frequently
due to an impaired immune system. Antibiotics may be given to
treat some infections.
- Parents should be present as much as possible for comfort and support if
hospitalization occurs.
- Remember that all children need well-baby checkups and immunizations.
Development
- Children develop faster as infants and toddlers than at any other time in
life. Enjoy watching your child grow and develop. Note the dates your infant
or toddler reaches milestones. Examples of developmental milestones are
crawling, standing and walking. Language milestones include saying the first
word, using several words and connecting two words. Remember, infants with
FASD may show some delays in reaching these milestones.
- Provide an environment where your child can play safely with the
least restriction. Provide toys and activities which are right for your
childs age and development. Children with FASD may need some safety
restrictions. Gates on stairways, crib nets and door alerting systems may be
necessary.
- Infants with FASD may have eating problems. Some infants and toddlers
fail to gain weight even when eating enough. Growth deficiency may continue
throughout childhood. Watch your childs food intake and weight gain. Talk
to your health provider or professional if you have concerns.
- Children with FASD are less likely to develop regular sleep cycles than
other children. They may also experience more interruptions in their sleep.
Helpful Hints to Manage Hyperactivity:
- Limit activities which cause overstimulation. Activities such as
pillow fighting, wrestling, television, video games or rock music may overstimulate.
Alternate activities requiring attention with those requiring physical
exercise. Quiet and focused activities such as finger painting or coloring
may help children slow down.
- Have a place where your toddler can go when overstimulated or overwhelmed.
It should be a comfortable and calm area. It should not be treated as a
punishment.
- Teach self-calming techniques. Soft music can be calming and may also help
to develop listening skills. If one technique is not working, try something
different.
Helpful Hints for Discipline Issues:
- Set both expectations and limitations. Consistent direction and discipline
are important for a child who has trouble learning and remembering rules.
Your child may not learn from past mistakes. Mistakes may be repeated over
and over again. Consistency helps all children develop self-control.
- Develop a system of rewards and discipline. Try to use the same system for
all your children. Children may notice if one child receives special
privileges.
- Discipline should be immediate. Do not delay. Your child may have trouble
connecting cause and effect. This means there may be difficulty in seeing a
connection between the behavior and the punishment. Discipline should be
viewed as an opportunity to teach appropriate behavior. A reward system may
work best. Sometimes praise and hugs can be just as effective. Change
rewards often to keep interest high. To avoid frustration, make sure there
are more successes than failures.
- Do not debate rules. Be brief. Avoid lecturing and threats. Review and
repeat consequences of negative behavior. Take time to teach and encourage
positive behavior.
- Avoid statements which place a value on behavior. For example, do not say
"that is a bad word." Say "you may not use that word."
Offer a different word which is acceptable.
- Children with FASD may copy behavior they have experienced or observed.
For this reason, never use physical punishments. Avoid all forms of
violence. Monitor television, movies and radio programs.
Helpful Hints to Provide Structure:
- Establish a few simple rules. Use picture cues. Use the same
language repetitively. Avoid using words with more than one meaning. Be
specific when telling your child what to do. Repeat directions as needed.
- Speak slowly. Pause between sentences to allow time for understanding.
- Daily routine is very important. Daily routine helps your child predict
coming events. Before bedtime, prepare for the next day. For example, lay
out clothing and shoes.
- Clearly define your childs space. Children with FASD may benefit
from a comfortable area they can call their own. Avoid clutter and
distractions.
Helpful Hints to Encourage self-esteem:
- All children are better able to manage life if they feel good about
themselves. Praise your child often to build self-esteem. Praise
accomplishments. Reward rather than punish. Offer support, not criticism.
Praise the behavior rather than the child. For example, say "good
work" rather than "good boy" or "girl". Separate
your child from the behavior. Do not make your child feel as if he or she is
a bad person. Encourage positive self-talk.
- Children with FASD may need to be reminded that you like them. Notice
good qualities and behaviors. Thank them for their efforts.
Helpful Hints For Behavior Issues:
- Behavior may be changed by redirecting activities. Try to engage your
child into positive play. Learn how to read and respond to emotional cues.
This may help avoid behavior problems.
- Infants and toddlers with FASD often have problems with attachment.
They may not show a preference for parents over others. They may not be able
to differ between a friend and someone they just met. These problems may get
worse as the child gets older. This can be very difficult for parents.
Caregivers may need to be alert 24 hours a day to keep their child safe.
- Sometimes, children who are not feeling well may regress in
behavior. They want parents to help them do things they previously did
themselves. Usually this is temporary and will end when they are feeling
better.
Child Care
- If you use child care, choose a provider who is willing to learn about
caring for a child with FASD. Be sure you feel confident in your
providers ability to understand and carry out your instructions. Teach
the provider about FASD and how to manage the condition.
- Children with FASD may need extra supervision to keep them safe. Choose
child care where this can be provided. Often, children with FASD do
better in small groups. Consistency with caregivers and routines is
important. Centers which value attachment, predictability,
flexibility, nurturing and provide various ways of coping are best.
- Develop an emergency plan for your child care provider. Write a list of
the reasons to contact you. Include phone numbers for yourself, your doctor
and several family members.
- Be sure your child care provider and helpers do not smoke if your child
has allergies, asthma or frequent ear infections.
- Colds and other infections are common in large child care centers.
Children with FASD often have more ear infections. Child care with fewer
children will reduce exposure to infections. It is not necessary nor are you
likely to prevent all illnesses. Having an occasional illness will help
develop your childs immune system.
- The Americans with Disabilities Act (ADA) provides that child care may not
refuse a child because of a special health need. This is regardless of child
care size or whether they receive public funds.
School
- Part C of the Individuals with Disabilities Education Act (IDEA) requires
schools to provide Early Intervention services. Services are provided
to children who have special health needs which affect learning or who have developmental
delays. Children from birth to age 3 are entitled to these services.
Parents are partners on a multidisciplinary team that develops an Individual
Family Service Plan (IFSP) for their child. Contact your local school
district to find out how this program works in your area. Ask to
speak to the Early Childhood Intervention Coordinator. PACER Center can also
provide information about Early Intervention. See the General Resources
section of this booklet for more information.
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TODDLER PROPERTY LAWS (light
hearted)
- If I like it, it's mine.
- If it's in my hand, it's mine.
- If I can take it from you, it's mine.
- If I had it a little while ago, it's mine.
- If it's mine, it must never appear to be yours in any way.
- If I'm doing or building something, all the pieces are mine.
- If it looks just like mine, it's mine.
- If I saw it first, it's mine.
- If you are playing with something, and you put it down,
it automatically becomes mine.
- If it's broken, it's yours. (No, the pieces are probably still mine.)
Other links with ideas for 0-3's
Toileting Programs Like every
teacher I have had my successes and failures. In some cases the success has been
hard fought over and number of years. Every once in a while you get an easy one.
You just take them anyway you can. http://198.161.103.254/writeword/myprogrm.htm
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